Isn’t he too old for that?

I have a good friend who has a 14 year old son with type 1 diabetes. He’s had it since he was six. She still helps him manage his diabetes. She’ll help with carb counting, she asks him about his blood sugar numbers, she downloads his pump and sends the data to his doctor, she keeps track of when it’s time to change the pump site. Heck, she even helps him change his pump site!

A few months ago when they were on vacation, his pump broke. She was freaking out because she realized she didn’t remember his pump settings and his insulin-to-carb ratios. She also hadn’t brought along long-acting insulin. There was a lot to be stressed about. But the only one stressing was her, not her 14 year old son who has diabetes.

The friends she was staying with thought something was wrong with that picture. Surely he should be the one freaking out, not his mom. After all, it is *his* diabetes.

A couple weeks later, she was lamenting to another friend about her son’s diabetes, and she too told her that she’s doing it all wrong: he’s 14, he’s going into high school, he’s going to be leaving for college in four years, it’s time he took responsibility for his diabetes!

If you think of diabetes like a chore such as laundry, or taking care of the dog, or cleaning your room, then it makes perfect sense. Not only is he 14 and becoming independent in all other aspects of his life, but he’s also been living with diabetes for eight years. Shouldn’t he know all there is to know about diabetes by now? Shouldn’t he be the one managing it?!

If you ask me, the answer is no. Diabetes isn’t merely a chore, it’s a full time job.

  • Would you expect your 14 year old to get a job and work at it 24/7 in addition to everything else they have on their plate such as school, sports, band, and social relationships?
  • Would you expect your 14 year old to make life and death decisions 10 times a day, every day?
  • There’s a reason 14 year old’s can’t drink, drive, or vote. They aren’t capable of taking on that level of responsibility.

Diabetes requires us and our children to do just that: check blood sugars, count carbs, calculate insulin doses, and use good judgement 10 – 15 times a day. Every time our children want to eat something–anything–they have to check their blood sugar, calculate (or guess) the carbs, administer insulin, and use judgement in the event they are before exercise, after exercise, or in the middle of exercising. And when I say “exercise” that includes mental exercising such as studying, reading, or taking a test.

And if you’re eating complicated foods such as hamburgers, pizza, or milkshakes–what teen would ever eat anything like that?–then you need to give additional thought to how to administer insulin.

You also have to be very aware of and in touch with how you’re feeling–are you feeling high or low? Do you need to treat with extra insulin or extra carbs? Do you have all of your supplies on you at all times? If teens lose their iPhones, imagine how much attention they give to the blood glucose monitor

If you’re on a pump you also have to keep track of how many days it’s been since the last time you changed your site. 14 year old’s rarely know what end is up. Do you really think they can count to three?

So next time your friends judge you, or offer unsolicited advice, or try to otherwise explain to you that you’re doing it all wrong when it comes to your child’s diabetes, tell them kindly, but firmly, that until they’ve lived with diabetes for one full day, they should not be giving you or your child advice on how to live with it for the rest of their lives.

This entry was posted in Life with Diabetes. Bookmark the permalink.

One Response to Isn’t he too old for that?

  1. Mary Day says:

    Thank you! Thank you! Thank you! As a mother of two daughters with Type 1, I wholeheartedly agree. These kids have it for the rest of their lives, as long as they know what to do and how to manage an emergency, it is our job to take take some of that burden as they attempt to enjoy their childhood. After returning from Bearskin Meadow Camp this summer, my 19 year old daughter thanked me for sacrificing so much for her as a child. She worked for the DYF in the office. After speaking with the parents at camp, she realised what we, as a family, went through. I did not regard it as sacrifice, I knew that she would have to take over and was happy to help as a parent who loves their kid. This is why Bearskin and all of the support groups are so important, this disease is not like regular parenting, it is a group effort forever. Both my girls are now in college, and I still receive the emergency phone calls for one thing or another, although it is less often, it still brings me right back to the beginning. You are doing a great job.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Connecting to %s